It’s true. My grandmother suffered for a very long time with ALS. I still don’t have words to convey how it feels to watch that happen, and I can only imagine how it must have been for those of the family closest to her — those who looked after her for so very long.
As for how it must have felt to grandmother herself… every time I even try to imagine it, I feel physically sick. The idea of being trapped in an increasingly immobile body is genuinely horrific to me.
I couldn’t ignore the ice-bucket meme, no matter how silly it may seem.